Research for Today not Tomorrow

Help lizzies fund Today

Help lizzies fund Today


Working today to change tomorrow!



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Working today to change tomorrow!



Lizzie's Story

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Lizzie’s Story

Lizzie's Fund

Raising funds for research into childhood brain tumours for The Brain Tumour Charity in loving memory of Lizzie

On 9th February 2018, after just a couple of weeks of minor symptoms – some double vision, a slight squint and generally just a bit wobbly – Lizzie, aged 9, was diagnosed with a brain tumour. It was the eve of the half term holiday and we were about to depart for a girls holiday of a lifetime, meeting up with her Dad, Mark, in Vietnam, who was away competing in a classic car rally. Within a few hours, Mark was on a plane home. The second MRI confirmed a horrifying diagnosis, DIPG, an inoperable brain tumour of the brainstem for which there is currently no effective treatment. DIPG affects around 25 children in the UK each year, with an average life of expectancy from diagnosis of just 9 months.  

Lizzie died in our arms on 15th November 2018, just a week before her 10th birthday. 

In the months after diagnosis, Lizzie fought hard to keep her life normal. Throughout her treatment she attended school as much as possible, keen to see her friends and enjoy her favourite lessons. She got a much longed for puppy, an adored companion, and we spent time doing lots of fun things. 

From an early age, Lizzie loved to bake and this remained a fantastic constant for Lizzie throughout her illness, something positive at which she could continue to excel, winning prizes at local shows in the adult classes. . 

During her illness, Lizzie wrote a recipe book, a compilation of over 100 recipes, “”Keep Baking”, which was published just days before she passed away. https://www.justgiving.com/fundraising/lizziesfundchristmas 

Lizzie’s Fund

Lizzie’s love for baking inspired her fundraising. It started with a cake stall at school, from which an amazing £4,000 was raised. This has snowballed, with family and friends holding more bake sales, sponsored walks, swims, cycles and sings, Christmas fairs and of course sales of her recipe book. 

Lizzie’s Fund is targeted to support research into childhood brain tumours and in just 6 months Lizzie’s Fund raised over £100,000. Lizzie bravely supported research every day through her participation in research trials, including BIOMEDE funded by The Brain Tumour Charity. Her family and friends are committed to ensuring that Lizzie’s Fund will provide the critical funds required to find a cure for brain tumours and thank everyone in advance for donating and supporting our battle against one of the most devastating of childhood cancers. 

Follow us on Facebook Lizzie’s Fund on Facebook Or email lizziesfund@yahoo.com

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lizzie's fund hits £150k!!!!!!

It's not quite a year since Lizzie asked permission to hold her first bake sale at school, but we've just hit a very big milestone in fundraising terms; Lizzie's Fund is now over £150,000. What a fantastic amount of money everyone has helped raise!!!  Thank you all 👏💜💜

Lizzie had such determination and enthusiasm to do something positive towards research into these awful tumours. As her family and friends, we're inspired by Lizzie every day, to continue to work in her memory, in her honour, to find a cure so other children don't face the same awful prognosis. So thank you to everyone for their support, for doing something positive for Lizzie by raising such an amazing amount of money in so many different ways 💜💜💜

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Lizzie's Fund is raising funds for research into childhood brain tumours for The Brain Tumour Charity

 

In February 2018, Lizzie was struggling with her eye sight and feeling a bit wobbly.  Within hours of seeing our GP, an MRI confirmed the most horrifying diagnosis, a rare and inoperable high grade brain tumour.  Since then Lizzie has shown courage and positivity, receiving radiotherapy and drug treatment, under the care of a marvellous team at Great Ormond Street Hospital, as we battle this awful disease.  

Lizzie’s love of baking inspired Lizzie’s Fund right from the beginning. The first events were cake sales, followed swiftly by friends and family organising and participating in sponsored swims, a mud run, fetes and raffles.  Lizzie’s Fund is committed to raising much needed funds for researching childhood brain tumours and we have lots of ideas planned for events and activities in the coming months. 

Lizzie bravely supports research every day through her participation in research trials. We hope that Lizzie’s Fund will provide the critical funds required to find a cure and thank everyone in advance for getting involved with fundraising and supporting our activities.

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Get Involved

Are you passionate about what we're doing? Let us know! We are always looking for volunteers to help us make our vision a reality. We'll help you find a way to volunteer that best suits you. We're excited to have you join the team!

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Thank You

Whether you help through monetary donations, volunteering your time, or spreading our mission through word-of-mouth, thank you. We couldn't accomplish our goals without the help of supporters like you. 

Events Supporting Lizzie's Fund

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+ Event Details


Thursday 22nd November 2018

Mount Bures Christmas Market

9:00 - 21:00

Mount Bures Hall, Mount Bures,CO8 5AS

+ Event Details

Thursday 22nd November 2018

Mount Bures Christmas Market


Christmas Gifts and Crafts. Space to Shop and Catch up with friends. Tea, Coffee, Mulled Wine, Cakes and Mince Pies. Fabulous Treat Filled Raffle

  


9:00 - 21:00

Mount Bures Hall, Mount Bures,CO8 5AS

Wednesday 28th November 2018

Willis Towers Watson Christmas Fayre

Willis Towers Watson Offices Ipswich

+ Event Details

Wednesday 28th November 2018

Willis Towers Watson Christmas Fayre

Christmas Fayre at Willis Towers Watson Ipswich Offices 

Willis Towers Watson Offices Ipswich

Friday 30th November 2018

Littlegarth School Christmas Fayre

Littlegarth School, Nayland, Essex

+ Event Details

Friday 30th November 2018

Littlegarth School Christmas Fayre

Lizzie's own School Christmas Fayre 

Littlegarth School, Nayland, Essex

More Events

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